Abstract
![CDATA[Given the increasing global importance of palliative care, and international recognition of family members as a key part of this care, this article makes a case for video-reflexive ethnography (VRE) to better understand family-centred palliative care, particularly within the shared spaces of a hospital. Specifically, the article demonstrates how this participatory methodology helped to: capture diverse exemplars of family-centred palliative care via a digital-recorder; engage palliative care clinicians as co-researchers to make sense of their nuanced performances; and distil some of the ingredients that enable family-centred palliative care, particularly within a hospital. To personify this case, the article is presented using a reflective style, whereby co-researchers describe and critique their experiences. They recount: their initial impressions of, and reservations about VRE; how the study unfolded and why; how decisions were made about what was recorded, the video-recordings that were interpreted by the palliative care team during reflexive sessions, who participated in these reflexive sessions, and why; the associated challenges; how the challenges were respectfully managed; what they learnt from their experiences; and what might be done differently in future VRE studies. Collectively, these reflections indicate three key points. First, they show how VRE can make the invisible visible, unveiling practices that might otherwise be overlooked, even among the individuals who are depicted in the video-recordings. Second, they reveal how this participatory methodology encourages reflective and reflexive practice within a team whose members have limited opportunity to do this regularly, to understand and potentially improve their individual and collective practices. Third, the reflections illustrate how VRE can culminate with findings that resonate with those who have a stake in the area under investigation – by involving participants as co-researchers, the findings are likely to have greater relevance, meaning, and (local) impact. After establishing these contributions, this article concludes with a discussion of the associated implications for scholars, practitioners, and policymakers.]]
Original language | English |
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Title of host publication | Conference Proceedings: ACSPRI Social Science Methodology Conference, University of Sydney, 12-14 December, 2018 |
Publisher | Australian Consortium for Social and Political Research Incorporated |
Pages | 69-78 |
Number of pages | 13 |
ISBN (Print) | 9780994637130 |
Publication status | Published - 2018 |
Event | Australian Consortium for Social and Political Research Incorporated. Conference - Duration: 12 Dec 2018 → … |
Conference
Conference | Australian Consortium for Social and Political Research Incorporated. Conference |
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Period | 12/12/18 → … |
Open Access - Access Right Statement
Proceedings Copyright Notice: The copyright to these articles are held by the listed authors and made available under the Creative Commons Attribution 3.0 Unproted Licence. See: https://creativecommons.org/licenses/by/3.0/Keywords
- ethnology
- families
- medical care
- palliative treatment
- quality of life
- video recordings