Accessing support before or after a parent dies from cancer and young people’s current wellbeing

A. Varathakeyan, F. E. J. McDonald, Pandora Patterson, K. Nicholson Perry, K. R. Allison

Research output: Contribution to journalArticlepeer-review

10 Citations (Scopus)

Abstract

Purpose To examine differences in distress and unmet needs between bereaved adolescent and young adult (AYA) offspring who accessed support before and after being bereaved by parental cancer, and to explore aspects of their cancer experience that influenced their help-seeking. Methods Phase 1: Surveys completed by AYAs (11–26 years) bereaved by parental cancer were subjected to analysis of covariance examining differences in distress and unmet needs between those who accessed support before (n = 159) and after (n = 212) parental bereavement. Phase 2: Semi structured interviews explored the cancer experiences of bereaved offspring (n = 8) and factors that influenced their decision to seek support. Results Phase 1: There were no significant group differences in distress and unmet needs; however, older and female AYAs reported higher levels of distress and unmet needs. Interestingly, individuals who accessed support pre bereavement were older on average (M = 17.35 years, SD = 3.26) than those who accessed support post bereavement (M = 15.73 years, SD = 3.26). Phase 2: Three themes emerged centred on socio-emotional developmental changes during and after the cancer trajectory. These related to: participants’ meaning-making and changes in understanding of the cancer experience, changing relationships and desires to fit in, and understanding of their own emotional needs. Conclusions While no differences were found in unmet needs and distress between those who sought support pre- or post bereavement, those seeking support pre-bereavement were older on average. Social and emotional development impacts how bereaved offspring access psychosocial support. Awareness of these issues can assist in improving support by ensuring services are age appropriate and families are sufficiently supported.
Original languageEnglish
Pages (from-to)797-805
Number of pages9
JournalSupportive Care in Cancer
Volume26
Issue number3
DOIs
Publication statusPublished - 2018

Keywords

  • bereavement
  • cancer
  • children of cancer patients
  • help, seeking behavior
  • teenagers
  • young adults

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