TY - JOUR
T1 - Analysis of an Australian death database of people with intellectual disability living out of the family home
T2 - Place of death and associated variables
AU - Wiese, Michele Y.
AU - Stancliffe, Roger J.
AU - Durvasula, Seeta
AU - Piepers, Daniel W.
AU - Wilson, Nathan J.
N1 - Publisher Copyright:
© The Author(s) 2023.
PY - 2024/9
Y1 - 2024/9
N2 - This study reports on a five-year data set about the deaths of 599 individuals in New South Wales Australia, who at the time of their death were living in out-of-home care. Analysis aimed to: i) gain a clearer understanding of place of death for people with intellectual disability; and ii) identify and analyse associated variables to investigate how well they predict place of death for this population. Hospital admissions, polypharmacy and living situation were the strongest standalone predictors of place of death. A hospital death was more likely if the target population were subject to polypharmacy, lived in a group home, had a moderate intellectual disability or had GORD. Death, and place of death, is an issue requiring individual consideration. This study has identified some of the variables that need attention when supporting people with intellectual disability to have a good death.
AB - This study reports on a five-year data set about the deaths of 599 individuals in New South Wales Australia, who at the time of their death were living in out-of-home care. Analysis aimed to: i) gain a clearer understanding of place of death for people with intellectual disability; and ii) identify and analyse associated variables to investigate how well they predict place of death for this population. Hospital admissions, polypharmacy and living situation were the strongest standalone predictors of place of death. A hospital death was more likely if the target population were subject to polypharmacy, lived in a group home, had a moderate intellectual disability or had GORD. Death, and place of death, is an issue requiring individual consideration. This study has identified some of the variables that need attention when supporting people with intellectual disability to have a good death.
KW - disability support worker
KW - place of death
KW - dysphagia
KW - nursing
KW - intellectual disability
UR - https://hdl.handle.net/1959.7/uws:72335
UR - http://www.scopus.com/inward/record.url?scp=85159717497&partnerID=8YFLogxK
U2 - 10.1177/17446295231175541
DO - 10.1177/17446295231175541
M3 - Article
SN - 1744-6309
SN - 1744-6295
VL - 28
SP - 824
EP - 838
JO - Journal of Intellectual Disabilities
JF - Journal of Intellectual Disabilities
IS - 3
ER -