Developing a death literacy index

Rosemary Leonard; Kerrie Noonan; Debbie Horsfall; Marguerite Kelly; John P. Rosenberg; Andrea Grindrod; Bruce Rumbold; Alison Rahn

doi:10.1080/07481187.2021.1894268

Developing a death literacy index

Rosemary Leonard, Kerrie Noonan, Debbie Horsfall, Marguerite Kelly, John P. Rosenberg, Andrea Grindrod, Bruce Rumbold, Alison Rahn

Research output: Contribution to journal › Article › peer-review

36 Citations (Scopus)

Abstract

Performing end-of-life care can be a catalyst for developing a capacity called death literacy. This study aimed to develop a comprehensive and useable measure of death literacy that has the potential to assess interventions with individuals, communities, and societies. Using a mixed methods approach, a Death Literacy Index was developed from personal narratives and input from practitioners and experts. Refined on a sample of 1330 Australians using exploratory and confirmatory factor analysis and structural equation modeling, a 29-item Death Literacy Index was found to be reliable and demonstrated construct validity. Further studies are needed to test predictive validity.

Original language	English
Pages (from-to)	2110-2122
Number of pages	13
Journal	Death Studies
Volume	46
Issue number	9
DOIs	https://doi.org/10.1080/07481187.2021.1894268
Publication status	Published - 2022

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© 2021 Taylor & Francis Group, LLC.

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abstract = "Performing end-of-life care can be a catalyst for developing a capacity called death literacy. This study aimed to develop a comprehensive and useable measure of death literacy that has the potential to assess interventions with individuals, communities, and societies. Using a mixed methods approach, a Death Literacy Index was developed from personal narratives and input from practitioners and experts. Refined on a sample of 1330 Australians using exploratory and confirmatory factor analysis and structural equation modeling, a 29-item Death Literacy Index was found to be reliable and demonstrated construct validity. Further studies are needed to test predictive validity.",

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AU - Leonard, Rosemary

AU - Noonan, Kerrie

AU - Horsfall, Debbie

AU - Kelly, Marguerite

AU - Rosenberg, John P.

AU - Grindrod, Andrea

AU - Rumbold, Bruce

AU - Rahn, Alison

PY - 2022

Y1 - 2022

N2 - Performing end-of-life care can be a catalyst for developing a capacity called death literacy. This study aimed to develop a comprehensive and useable measure of death literacy that has the potential to assess interventions with individuals, communities, and societies. Using a mixed methods approach, a Death Literacy Index was developed from personal narratives and input from practitioners and experts. Refined on a sample of 1330 Australians using exploratory and confirmatory factor analysis and structural equation modeling, a 29-item Death Literacy Index was found to be reliable and demonstrated construct validity. Further studies are needed to test predictive validity.

AB - Performing end-of-life care can be a catalyst for developing a capacity called death literacy. This study aimed to develop a comprehensive and useable measure of death literacy that has the potential to assess interventions with individuals, communities, and societies. Using a mixed methods approach, a Death Literacy Index was developed from personal narratives and input from practitioners and experts. Refined on a sample of 1330 Australians using exploratory and confirmatory factor analysis and structural equation modeling, a 29-item Death Literacy Index was found to be reliable and demonstrated construct validity. Further studies are needed to test predictive validity.

UR - http://hdl.handle.net/1959.7/uws:63345

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DO - 10.1080/07481187.2021.1894268

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VL - 46

SP - 2110

EP - 2122

JO - Death Studies

JF - Death Studies

IS - 9

ER -

Developing a death literacy index

Abstract

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