Dying to talk : exploring dying and death

S. Read; M. Wiese; R. Stancliffe; G. Jeltes; J. Clayton

doi:10.1111/jir.12306

Dying to talk : exploring dying and death

S. Read, M. Wiese, R. Stancliffe, G. Jeltes, J. Clayton

Research output: Contribution to journal › Article › peer-review

Abstract

Aim: Adults with intellectual disabilities (ID) often lack opportunities to discuss their end-of-life concerns and wishes, particularly regarding their own death. Conclusions: Problems for people with ID about end-of-life knowledge, planning and self-determination provide clear evidence of the need for intervention. Disability staff may need support and training to engage in constructive and supportive conversations with clients about end-of-life.

Original language	English
Pages (from-to)	806-806
Number of pages	1
Journal	Journal of Intellectual Disability Research
Volume	60
Issue number	45511
DOIs	https://doi.org/10.1111/jir.12306
Publication status	Published - 2016

Keywords

terminal care
people with mental disabilities
decision making

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10.1111/jir.12306

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title = "Dying to talk : exploring dying and death",

abstract = "Aim: Adults with intellectual disabilities (ID) often lack opportunities to discuss their end-of-life concerns and wishes, particularly regarding their own death. Conclusions: Problems for people with ID about end-of-life knowledge, planning and self-determination provide clear evidence of the need for intervention. Disability staff may need support and training to engage in constructive and supportive conversations with clients about end-of-life.",

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T1 - Dying to talk : exploring dying and death

AU - Read, S.

AU - Wiese, M.

AU - Stancliffe, R.

AU - Jeltes, G.

AU - Clayton, J.

PY - 2016

Y1 - 2016

N2 - Aim: Adults with intellectual disabilities (ID) often lack opportunities to discuss their end-of-life concerns and wishes, particularly regarding their own death. Conclusions: Problems for people with ID about end-of-life knowledge, planning and self-determination provide clear evidence of the need for intervention. Disability staff may need support and training to engage in constructive and supportive conversations with clients about end-of-life.

AB - Aim: Adults with intellectual disabilities (ID) often lack opportunities to discuss their end-of-life concerns and wishes, particularly regarding their own death. Conclusions: Problems for people with ID about end-of-life knowledge, planning and self-determination provide clear evidence of the need for intervention. Disability staff may need support and training to engage in constructive and supportive conversations with clients about end-of-life.

KW - terminal care

KW - people with mental disabilities

KW - decision making

UR - http://handle.westernsydney.edu.au:8081/1959.7/uws:42750

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DO - 10.1111/jir.12306

M3 - Article

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SP - 806

EP - 806

JO - Journal of Intellectual Disability Research

JF - Journal of Intellectual Disability Research

IS - 45511

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Dying to talk : exploring dying and death

Abstract

Keywords

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