End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice

Roger J. Stancliffe; Michele Wiese; Philip McCallion; Mary McCarron

doi:10.1007/978-3-030-98697-1

End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice

Roger J. Stancliffe, Michele Wiese, Philip McCallion, Mary McCarron

Western Sydney University

Research output: Book/Research Report › Authored Book

2 Citations (Scopus)

Abstract

This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services. The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience.

Original language	English
Place of Publication	Switzerland
Publisher	Palgrave Macmillan
Number of pages	542
ISBN (Print)	9783030986964
DOIs	https://doi.org/10.1007/978-3-030-98697-1
Publication status	Published - 2022

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10.1007/978-3-030-98697-1

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title = "End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice",

abstract = "This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services. The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience.",

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AU - McCallion, Philip

AU - McCarron, Mary

PY - 2022

Y1 - 2022

N2 - This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services. The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience.

AB - This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services. The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience.

UR - https://hdl.handle.net/1959.7/uws:67192

UR - https://ebookcentral.proquest.com/lib/uwsau/reader.action?docID=7015861&ppg=1

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DO - 10.1007/978-3-030-98697-1

M3 - Authored Book

SN - 9783030986964

BT - End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice

PB - Palgrave Macmillan

CY - Switzerland

ER -

End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice

Abstract

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