End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice

Roger J. Stancliffe; Michele Wiese; Philip McCallion; Mary McCarron

doi:10.1007/978-3-030-98697-1

End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice

Roger J. Stancliffe
, Michele Wiese
, Philip McCallion
, Mary McCarron

Research output: Book/Research Report › Authored Book

5 Citations (Scopus)

Abstract

This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services. The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience.

Original language	English
Place of Publication	Switzerland
Publisher	Palgrave Macmillan
Number of pages	519
ISBN (Electronic)	9783030986971
ISBN (Print)	9783030986964
DOIs	https://doi.org/10.1007/978-3-030-98697-1
Publication status	Published - 1 Jan 2022

Bibliographical note

Publisher Copyright:
© The Editor(s) (if applicable) and The Author(s), under exclusive license to Springer Nature Switzerland AG 2022.

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

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10.1007/978-3-030-98697-1

Cite this

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abstract = "This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services. The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience.",

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AU - McCarron, Mary

N1 - Publisher Copyright: © The Editor(s) (if applicable) and The Author(s), under exclusive license to Springer Nature Switzerland AG 2022.

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AB - This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services. The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience.

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UR - https://ebookcentral.proquest.com/lib/uwsau/reader.action?docID=7015861&ppg=1

UR - https://www.scopus.com/pages/publications/85163548419

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DO - 10.1007/978-3-030-98697-1

M3 - Authored Book

SN - 9783030986964

BT - End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice

PB - Palgrave Macmillan

CY - Switzerland

ER -

End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice

Abstract

Bibliographical note

UN SDGs

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