End-of-life care issues and people with intellectual disability

Michelle Y. Wiese; Roger J. Stancliffe; Susan Baladin

doi:10.1111/j.1741-1130.2009.00210

End-of-life care issues and people with intellectual disability

Michelle Y. Wiese, Roger J. Stancliffe, Susan Baladin

Western Sydney University

Research output: Contribution to journal › Article › peer-review

Abstract

Increasingly in Australia, as in many developed countries, elderly people have access to home based, individual supports at the end of life. However, for those with intellectual disabilities, accessing equivalent supports is a relatively new frontier. End-of-life care and death is still largely taboo with little open discussion and with very little examination of the prominent issues and support needs. Two questions formed the basis of the research: (1) what is the current status of end-of-life care and dying within the agency; and (2) what might be a “good dying” from the carers’ perspective.

Original language	English
Pages (from-to)	159-159
Number of pages	1
Journal	Journal of Policy and Practice in Intellectual Disabilities
Volume	6
Issue number	2
DOIs	https://doi.org/10.1111/j.1741-1130.2009.00210
Publication status	Published - 2009

Keywords

people with mental disabilities
terminal care
institutional care
Australia

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10.1111/j.1741-1130.2009.00210

Cite this

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abstract = "Increasingly in Australia, as in many developed countries, elderly people have access to home based, individual supports at the end of life. However, for those with intellectual disabilities, accessing equivalent supports is a relatively new frontier. End-of-life care and death is still largely taboo with little open discussion and with very little examination of the prominent issues and support needs. Two questions formed the basis of the research: (1) what is the current status of end-of-life care and dying within the agency; and (2) what might be a “good dying” from the carers{\textquoteright} perspective.",

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AB - Increasingly in Australia, as in many developed countries, elderly people have access to home based, individual supports at the end of life. However, for those with intellectual disabilities, accessing equivalent supports is a relatively new frontier. End-of-life care and death is still largely taboo with little open discussion and with very little examination of the prominent issues and support needs. Two questions formed the basis of the research: (1) what is the current status of end-of-life care and dying within the agency; and (2) what might be a “good dying” from the carers’ perspective.

KW - people with mental disabilities

KW - terminal care

KW - institutional care

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UR - http://handle.uws.edu.au:8081/1959.7/uws:37234

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ER -

End-of-life care issues and people with intellectual disability

Abstract

Keywords

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