End-of-life choices

Michele Y. Wiese; Irene Tuffrey-Wijne

doi:10.1007/978-3-030-35683-5_17

End-of-life choices

Michele Y. Wiese, Irene Tuffrey-Wijne

Western Sydney University

Research output: Chapter in Book / Conference Paper › Chapter

Abstract

The research about understanding the end of life and decision-making by people with intellectual disability is in its infancy. There are many unknowns, limited by the available empirical research. In this chapter we report the evidence combined with best clinical practice. The chapter focuses on end of life in older age where the person has time to make choices. We do not address the tragedy of sudden and unexpected death, wherein there has been no or little time to make decisions. Emphasis is given to how families, carers and professionals (We use the term “caregivers” throughout the chapter as the collective term to include families, carers and professionals, unless otherwise specified.) can ensure that the person with intellectual disability is central in end-of-life decision-making and can meaningfully participate in end-of-life care planning.

Original language	English
Title of host publication	Choice, Preference, and Disability: Promoting Self-Determination Across the Lifespan
Editors	Roger J. Stancliffe, Michael L. Wehmeyer, Karrie A. Shogren, Brian H. Abery
Place of Publication	Switzerland
Publisher	Springer
Pages	317-335
Number of pages	19
ISBN (Electronic)	9783030356835
ISBN (Print)	9783030356828
DOIs	https://doi.org/10.1007/978-3-030-35683-5_17
Publication status	Published - 2020

Keywords

people with mental disabilities
death
palliative treatment

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10.1007/978-3-030-35683-5_17

Cite this

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KW - death

KW - palliative treatment

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BT - Choice, Preference, and Disability: Promoting Self-Determination Across the Lifespan

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A2 - Abery, Brian H.

PB - Springer

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ER -

End-of-life choices

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