Experience of end-of-life issues with people with intellectual disability

Roger J. Stancliffe; Michele Y. Wiese; Philip McCallion; Mary McCarron

doi:10.1007/978-3-030-98697-1_2

Experience of end-of-life issues with people with intellectual disability

Roger J. Stancliffe, Michele Y. Wiese, Philip McCallion, Mary McCarron

Western Sydney University

Research output: Chapter in Book / Conference Paper › Chapter

Abstract

This chapter aims to examine available end-of-life research involving people with intellectual disability, with a focus on their experiences, rather than the views of others such as caregivers and clinicians. In part, it is intended to complement Chapter 1, which dealt with general community experiences. This chapter provides an overview of the current participation and experience of people with intellectual disability in end-of-life matters. Many ensuing chapters offer further detail and these are referred to throughout.

Original language	English
Title of host publication	End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice
Editors	Roger J. Stancliffe, Michelle Y. Wiese, Philip McCallion, Mary McCarron
Place of Publication	Switzerland
Publisher	Palgrave Macmillan
Pages	29-57
Number of pages	29
ISBN (Electronic)	9783030986971
ISBN (Print)	9783030986964
DOIs	https://doi.org/10.1007/978-3-030-98697-1_2
Publication status	Published - 2022

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10.1007/978-3-030-98697-1_2

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Stancliffe, R. J., Wiese, M. Y., McCallion, P., & McCarron, M. (2022). Experience of end-of-life issues with people with intellectual disability. In R. J. Stancliffe, M. Y. Wiese, P. McCallion, & M. McCarron (Eds.), End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice (pp. 29-57). Palgrave Macmillan. https://doi.org/10.1007/978-3-030-98697-1_2

Stancliffe, Roger J. ; Wiese, Michele Y. ; McCallion, Philip et al. / Experience of end-of-life issues with people with intellectual disability. End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice. editor / Roger J. Stancliffe ; Michelle Y. Wiese ; Philip McCallion ; Mary McCarron. Switzerland : Palgrave Macmillan, 2022. pp. 29-57

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abstract = "This chapter aims to examine available end-of-life research involving people with intellectual disability, with a focus on their experiences, rather than the views of others such as caregivers and clinicians. In part, it is intended to complement Chapter 1, which dealt with general community experiences. This chapter provides an overview of the current participation and experience of people with intellectual disability in end-of-life matters. Many ensuing chapters offer further detail and these are referred to throughout.",

author = "Stancliffe, {Roger J.} and Wiese, {Michele Y.} and Philip McCallion and Mary McCarron",

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doi = "10.1007/978-3-030-98697-1_2",

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Stancliffe, RJ, Wiese, MY, McCallion, P & McCarron, M 2022, Experience of end-of-life issues with people with intellectual disability. in RJ Stancliffe, MY Wiese, P McCallion & M McCarron (eds), End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice. Palgrave Macmillan, Switzerland, pp. 29-57. https://doi.org/10.1007/978-3-030-98697-1_2

Experience of end-of-life issues with people with intellectual disability. / Stancliffe, Roger J.; Wiese, Michele Y.; McCallion, Philip et al.
End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice. ed. / Roger J. Stancliffe; Michelle Y. Wiese; Philip McCallion; Mary McCarron. Switzerland: Palgrave Macmillan, 2022. p. 29-57.

Research output: Chapter in Book / Conference Paper › Chapter

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Stancliffe RJ, Wiese MY, McCallion P, McCarron M. Experience of end-of-life issues with people with intellectual disability. In Stancliffe RJ, Wiese MY, McCallion P, McCarron M, editors, End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice. Switzerland: Palgrave Macmillan. 2022. p. 29-57 doi: 10.1007/978-3-030-98697-1_2

Experience of end-of-life issues with people with intellectual disability

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