Abstract
![CDATA[Introduction: The National Disability Insurance Scheme (NDIS) promises to support a better life for individuals living with significant disability and their families/carers. This includes families/carers of emerging adults aged between 18 and 29 years, who experience particular challenges associated with their role. These include stress during the transition from paediatric to adult health services, and trying to support their emerging adult child to build the increased independence customary of this life stage, while also balancing ongoing care needs. These challenges have potential for change through implementation of the NDIS, with possible benefits for both emerging adults and families/carers. However, there is currently no evidence pertaining to effectiveness of the NDIS in addressing these challenges in New South Wales (NSW). Objectives: This study explores the experiences and perceptions of families/carers of emerging adults with disability, in relation to the NDIS in NSW. Method: Data was collected for this qualitative study through an electronic survey consisting of predominantly open-ended questions. The responses of 24 participants were analysed using thematic analysis. Results: Three organising themes were identified. Families/carers of emerging adults with disability have found the NDIS to be a “backwards step” when compared to the previous state-funded system. Their workload has increased and many are concerned about the sustainability of annual planning requirements, highlighting the test of “stamina” required. Regardless, they remain optimistic about the NDIS’ “excellent intentions” and hopeful for the future, highlighted by the global theme “desperately hoping they will fix it”. Conclusion: The implementation of the NDIS in NSW has been challenging for families/ carers of emerging adults with disability, however optimism for future opportunity remains. Findings from this study highlight recommendations to shape future research, policy and service delivery surrounding the NDIS, including services provided by occupational therapists.]]
Original language | English |
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Title of host publication | Australian Occupational Therapy Journal, Vol. 66, Suppl. 1: Occupational Therapy Australia 28th National Conference and Exhibition, 10-12 July 2019, International Convention Centre, Sydney |
Publisher | Wiley-Blackwell Publishing Asia |
Pages | 70-70 |
Number of pages | 1 |
Publication status | Published - 2019 |
Event | Occupational Therapy Australia. National Conference and Exhibition - Duration: 1 Jan 2019 → … |
Conference
Conference | Occupational Therapy Australia. National Conference and Exhibition |
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Period | 1/01/19 → … |
Keywords
- people with disabilities
- services for
- National Disability Insurance Scheme (Australia)
- caregivers
- occupational therapists
- Australia