Experiences of community living staff assisting people with intellectual disability to know about dying as the end of life approaches

The aim of this study was to explore community living staff experiences of engaging people with intellectual disability to know about dying and death. Guided by grounded theory methodology, focus groups and individual interviews were conducted with a range of staff, including those who had not yet experienced a client death, those who had experienced sudden client deaths, and those who had experienced client deaths pre-dated by extensive end-of-life care.