Expressing sexuality in silent and weep: experience of Chinese people with intellectual disabilities and parents

Background: Sexual well-being significantly impacts the overall quality of life for individuals with and without intellectual disabilities. Notably, parents play a pivotal role in influencing their children's sexual development, and their attitudes towards this topic are shaped by Chinese sociocultural values. Methods: This study employed Interpretative phenomenological analysis to explore the experiences and attitudes of five individuals with intellectual disabilities and seven parents/caregivers regarding the sexual needs of their adult offspring with intellectual disabilities. Results: The findings revealed participants' experiences and concerns, often navigating the challenges posed by traditional Chinese cultural restrictions through responses characterised as 'Silent' (avoidance of discussion) and 'Weep' (deep-seated psycho-emotional burden). Conclusions: This research emphasises the importance of a pluralistic society and advocates for promoting sexual autonomy among individuals with intellectual disabilities. The findings have implications for future practises and highlight the need for a more inclusive and compassionate approach to their sexual well-being.