TY - JOUR
T1 - Health promotion challenges for young adults living with intellectual disability and type 1 diabetes
AU - Marks, Anne L.
AU - Mahoney, Natasha
AU - Chen, Yu-Wei
AU - Cordier, Reinie
AU - Buchanan, Angus
AU - Wilson, Nathan J.
PY - 2022
Y1 - 2022
N2 - Background: Self-management of type 1 diabetes mellitus (T1DM) can be challenging for people with intellectual disability. Often, parents provide health support due to lack of appropriate services outside the home. The study aim was to identify barriers and facilitators to T1DM self-management for young adults with intellectual disability and the implications for health promotion. Methods: Five male participants with intellectual disability, aged 17–26 years, and seven parents were interviewed between October 2017 and February 2019. Interview data were descriptively analysed. Findings: Two categories for barriers and facilitators were identified: 1) Diabetes self-management is complex (carbohydrate counting, blood glucose level monitoring, insulin therapy); 2) support for diabetes care (reliance on parents and carers, the National Disability Insurance Scheme, mainstream diabetes service support). Conclusions: Parents are critical for the support of people with intellectual disability and T1DM in the absence of disability staff with appropriate health skills.
AB - Background: Self-management of type 1 diabetes mellitus (T1DM) can be challenging for people with intellectual disability. Often, parents provide health support due to lack of appropriate services outside the home. The study aim was to identify barriers and facilitators to T1DM self-management for young adults with intellectual disability and the implications for health promotion. Methods: Five male participants with intellectual disability, aged 17–26 years, and seven parents were interviewed between October 2017 and February 2019. Interview data were descriptively analysed. Findings: Two categories for barriers and facilitators were identified: 1) Diabetes self-management is complex (carbohydrate counting, blood glucose level monitoring, insulin therapy); 2) support for diabetes care (reliance on parents and carers, the National Disability Insurance Scheme, mainstream diabetes service support). Conclusions: Parents are critical for the support of people with intellectual disability and T1DM in the absence of disability staff with appropriate health skills.
UR - http://hdl.handle.net/1959.7/uws:62847
U2 - 10.1177/17446295211032767
DO - 10.1177/17446295211032767
M3 - Article
SN - 1744-6309
SN - 1744-6295
VL - 26
SP - 853
EP - 868
JO - Journal of Intellectual Disabilities
JF - Journal of Intellectual Disabilities
IS - 4
ER -