How people with intellectual disability are dying and implications for quality care

Jane Bernal; Michele Y. Wiese; Stuart Todd

doi:10.1007/978-3-030-98697-1_6

How people with intellectual disability are dying and implications for quality care

Jane Bernal, Michele Y. Wiese, Stuart Todd

Western Sydney University

Research output: Chapter in Book / Conference Paper › Chapter

3 Citations (Scopus)

Abstract

There is growing interest about how people with intellectual disability can be supported well at the end of their lives. Little research attention has been given to the patterns of their dying, the extent to which it was anticipated, the availability of and timely access to planning and quality care, and the places where death and dying occurred. Understanding patterns of death and mortality is critical, offering important implications for end-of-life care. In this chapter, the international literature is used to provide a picture of dying and death among people with intellectual disability, with wherever possible, comparison to the general population. The implications for end-of-life care are highlighted.

Original language	English
Title of host publication	End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice
Editors	Roger J. Stancliffe, Michelle Y. Wiese, Philip McCallion, Mary McCarron
Place of Publication	Switzerland
Publisher	Palgrave Macmillan
Pages	149-177
Number of pages	29
ISBN (Electronic)	9783030986971
ISBN (Print)	9783030986964
DOIs	https://doi.org/10.1007/978-3-030-98697-1_6
Publication status	Published - 2022

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10.1007/978-3-030-98697-1_6

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Bernal, J., Wiese, M. Y., & Todd, S. (2022). How people with intellectual disability are dying and implications for quality care. In R. J. Stancliffe, M. Y. Wiese, P. McCallion, & M. McCarron (Eds.), End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice (pp. 149-177). Palgrave Macmillan. https://doi.org/10.1007/978-3-030-98697-1_6

Bernal, Jane ; Wiese, Michele Y. ; Todd, Stuart. / How people with intellectual disability are dying and implications for quality care. End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice. editor / Roger J. Stancliffe ; Michelle Y. Wiese ; Philip McCallion ; Mary McCarron. Switzerland : Palgrave Macmillan, 2022. pp. 149-177

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Bernal, J, Wiese, MY & Todd, S 2022, How people with intellectual disability are dying and implications for quality care. in RJ Stancliffe, MY Wiese, P McCallion & M McCarron (eds), End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice. Palgrave Macmillan, Switzerland, pp. 149-177. https://doi.org/10.1007/978-3-030-98697-1_6

How people with intellectual disability are dying and implications for quality care. / Bernal, Jane; Wiese, Michele Y.; Todd, Stuart.
End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice. ed. / Roger J. Stancliffe; Michelle Y. Wiese; Philip McCallion; Mary McCarron. Switzerland: Palgrave Macmillan, 2022. p. 149-177.

Research output: Chapter in Book / Conference Paper › Chapter

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Bernal J, Wiese MY, Todd S. How people with intellectual disability are dying and implications for quality care. In Stancliffe RJ, Wiese MY, McCallion P, McCarron M, editors, End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice. Switzerland: Palgrave Macmillan. 2022. p. 149-177 doi: 10.1007/978-3-030-98697-1_6

How people with intellectual disability are dying and implications for quality care

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