How people with intellectual disability are dying and implications for quality care

Jane Bernal; Michele Y. Wiese; Stuart Todd

doi:10.1007/978-3-030-98697-1_6

How people with intellectual disability are dying and implications for quality care

Jane Bernal, Michele Y. Wiese, Stuart Todd

Research output: Chapter in Book / Conference Paper › Chapter

3 Citations (Scopus)

Abstract

The characteristics of quality end-of-life care for people with intellectual disability are becoming increasingly clear. The research also shows the urgent and growing need for care, for an ageing population with increased incidence of life-limiting illnesses requiring often extended periods of care. A necessary first step to providing quality end-of-life care is to understand the conditions under which this group currently experiences death. This chapters uses the international literature to offer a picture about the current patterns of death, including death causes, age at and place of death, anticipated and potentially avoidable deaths, and deaths during the COVID-19 pandemic. Throughout, comparisons are made to the general population. Reflection questions to translate research to practice are given, as well as practical resources.

Original language	English
Title of host publication	End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice
Editors	Roger J. Stancliffe, Michelle Y. Wiese, Philip McCallion, Mary McCarron
Place of Publication	Switzerland
Publisher	Palgrave Macmillan
Pages	149-177
Number of pages	29
ISBN (Electronic)	9783030986971
ISBN (Print)	9783030986964
DOIs	https://doi.org/10.1007/978-3-030-98697-1_6
Publication status	Published - 1 Jan 2022

Bibliographical note

Publisher Copyright:
© The Editor(s) (if applicable) and The Author(s), under exclusive license to Springer Nature Switzerland AG 2022.

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10.1007/978-3-030-98697-1_6

Cite this

Bernal, J., Wiese, M. Y., & Todd, S. (2022). How people with intellectual disability are dying and implications for quality care. In R. J. Stancliffe, M. Y. Wiese, P. McCallion, & M. McCarron (Eds.), End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice (pp. 149-177). Palgrave Macmillan. https://doi.org/10.1007/978-3-030-98697-1_6

Bernal, Jane ; Wiese, Michele Y. ; Todd, Stuart. / How people with intellectual disability are dying and implications for quality care. End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice. editor / Roger J. Stancliffe ; Michelle Y. Wiese ; Philip McCallion ; Mary McCarron. Switzerland : Palgrave Macmillan, 2022. pp. 149-177

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Bernal, J, Wiese, MY & Todd, S 2022, How people with intellectual disability are dying and implications for quality care. in RJ Stancliffe, MY Wiese, P McCallion & M McCarron (eds), End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice. Palgrave Macmillan, Switzerland, pp. 149-177. https://doi.org/10.1007/978-3-030-98697-1_6

How people with intellectual disability are dying and implications for quality care. / Bernal, Jane; Wiese, Michele Y.; Todd, Stuart.
End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice. ed. / Roger J. Stancliffe; Michelle Y. Wiese; Philip McCallion; Mary McCarron. Switzerland: Palgrave Macmillan, 2022. p. 149-177.

Research output: Chapter in Book / Conference Paper › Chapter

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Bernal J, Wiese MY, Todd S. How people with intellectual disability are dying and implications for quality care. In Stancliffe RJ, Wiese MY, McCallion P, McCarron M, editors, End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice. Switzerland: Palgrave Macmillan. 2022. p. 149-177 doi: 10.1007/978-3-030-98697-1_6

How people with intellectual disability are dying and implications for quality care

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