TY - JOUR
T1 - Hypertriglyceridemia : rationale, design and implementation of the Australian Hypertriglyceridemia Registry
AU - Pang, J.
AU - Li, Stephen C.H.
AU - Chan, D. C.
AU - Sullivan, D. R.
AU - Woodward, A.-M.
AU - Watts, G. F.
PY - 2022
Y1 - 2022
N2 - Purpose of reviewHypertriglyceridemia (HTG) is a risk factor for atherosclerotic cardiovascular disease (ASCVD), aortic stenosis, hepatic steatosis and pancreatitis. We briefly review the aetiology and treatment of HTG and familial chylomicronemia syndrome (FCS), as well as the implementation of a clinical quality registry for improving care, the Australian Hypertriglyceridemia (AUSTRIG) Registry.Recent findingsThere is a need to improve the detection of individuals with severe HTG and FCS, who could benefit from more intense and novel treatments to prevent end-organ damage. Patient registries provide valuable data for advancing care of individuals with severe HTG at high risk of acute pancreatitis, steatohepatitis and ASCVD. However, there is a paucity of registries of such patients. We outline the design and implementation of the AUSTRIG Registry.SummaryClinical registries can be employed in many ways for improving outcomes for patients with HTG, through the collation and analysis of data for enabling health service planning, clinical trials and audits, and for better informing and empowering registrants.
AB - Purpose of reviewHypertriglyceridemia (HTG) is a risk factor for atherosclerotic cardiovascular disease (ASCVD), aortic stenosis, hepatic steatosis and pancreatitis. We briefly review the aetiology and treatment of HTG and familial chylomicronemia syndrome (FCS), as well as the implementation of a clinical quality registry for improving care, the Australian Hypertriglyceridemia (AUSTRIG) Registry.Recent findingsThere is a need to improve the detection of individuals with severe HTG and FCS, who could benefit from more intense and novel treatments to prevent end-organ damage. Patient registries provide valuable data for advancing care of individuals with severe HTG at high risk of acute pancreatitis, steatohepatitis and ASCVD. However, there is a paucity of registries of such patients. We outline the design and implementation of the AUSTRIG Registry.SummaryClinical registries can be employed in many ways for improving outcomes for patients with HTG, through the collation and analysis of data for enabling health service planning, clinical trials and audits, and for better informing and empowering registrants.
UR - https://hdl.handle.net/1959.7/uws:78168
U2 - 10.1097/MED.0000000000000715
DO - 10.1097/MED.0000000000000715
M3 - Article
SN - 1752-296X
VL - 29
SP - 131
EP - 140
JO - Current Opinion in Endocrinology\, Diabetes and Obesity
JF - Current Opinion in Endocrinology\, Diabetes and Obesity
IS - 2
ER -