Identifying factors associated with the uptake of home dialysis : observatonal study methodology

Background:: The use of home dialysis has been declining in Australia, despite the considerable advantages for patients. Little is known about the factors that contribute to the successful uptake of home dialysis, although increased utility costs have been identified as one possible factor affecting the decision to take up home dialysis. Objectives: This Australian multicentre observational study will identify factors that either facilitate or inhibit the uptake of home dialysis from patients' perspectives, including the evaluation of whether the current levels of financial support impacts on their decision. Design: Factors influencing decisions about home or hospital dialysis will be explored from the patients' perspective through survey and interviews. Initially, participants will be recruited from participating dialysis centres and invited to complete a survey. Staff will collect clinical data for all those participating. A subsection of patients will be invited to participate in an individual interview or focus group to gather more information. Participants: Participants will be recruited from dialysis centres affiliated with the HOME Network, a national initiative to engage health care professionals in the field of home dialysis. Measurements: Combining the analysis of individual and group data that is both reported and observed will offer an in-depth understanding of patients' perception of home dialysis that will inform policy and practice at both participating centres and in the broader clinical community. Results: Results obtained will serve as a platform for further research of this relatively unexplored topic.