Meeting the information needs of people with multiple sclerosis

A health needs assessment of people with multiple sclerosis (MS) in Leeds identified the need for information as a priority. An information pack was developed using focus groups and individual interviews undertaken with people with MS, carers and health-care professionals. A second group of people with MS participated in a 6-month evaluation, recording symptoms, quality of life and health status at baseline and follow-up, Usage of the information pack and its suitability was recorded. Fatigue and muscle stiffness were the most commonly reported symptoms (79%). Although quality of life was relatively good at baseline, the progressive group became worse (P <0.05) at follow-up. Participants experiencing problems were more likely to use the information, but the pack was thought to be useful by all participants. Consensus as to when it should be given to the newly diagnosed could not be reached.