Navigating multiple and complex systems of care and support with ageing family carers from multicultural backgrounds in Australia

Rohini Balram, Daniel Doh, Nichole Georgeou, Karen Soldatic, Lise Mogensen

Research output: Contribution to journalArticlepeer-review

Abstract

Ageing family caregivers of family members with disability must navigate complex social care systems within a single household for long-term and end-of-life transitions. This is particularly challenging for migrants from culturally and racially marginalised (caRM) backgrounds, given their historical exclusion from developing disability and aged care support systems. Limited research exists on the lived experiences of new and second-generation caRM communities providing informal care to family members with disabilities, globally and in Australia. This paper highlights the challenges faced by caRM families navigating racial, ethnic, and immigration politics while seeking access to appropriate disability and ageing social care supports. The findings reveal that Many caRM families face isolation and difficulty accessing needed support due to misconceptions about their strong local networks. Moreover, the significance of place, especially in low-resource urban areas, poses challenges for ageing family primary caregivers managing a dual long-term care arrangement, leading to uncertainties about their future.
Original languageEnglish
Number of pages14
JournalDisability and Society
DOIs
Publication statusPublished - 2024

Bibliographical note

Publisher Copyright:
© 2024 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.

Open Access - Access Right Statement

© 2024 the author(s). Published by informa UK limited, trading as taylor & Francis Group. this is an open access article distributed under the terms of the creative commons attribution-Noncommercial-NoDerivatives license (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited, and is not altered, transformed, or built upon in any way. the terms on which this article has been published allow the posting of the accepted Manuscript in a repository by the author(s) or with their consent.

Keywords

  • care transition
  • culturally and linguistically marginalised communities
  • caregivers
  • Ageing
  • disability
  • Western Sydney

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