OMERACT development of a core domain set of outcomes for shared decision-making interventions

Karine Toupin-April; Jennifer L. Barton; Liana Fraenkel; Alexa Meara; Linda C. Li; Peter Brooks; Maarten de Wit; Dawn Stacey; France Légaré; Beverley Shea; Anne Lyddiatt; Cathie Hofstetter; Robin Christensen; Marieke Scholte Voshaar; Maria E. Suarez-Almazor; Annelies Boonen; Tanya Meade; Lyn March; Janet Elizabeth Jull; Willemina Campbell; Rieke Alten; Suvi Karuranga; Esi M. Morgan; Ayano Kelly; Jessica Kaufman; Sophie Hill; Lara J. Maxwell; Dorcas Beaton; Yasser El-Miedany; Shikha Mittoo; Susan J. Bartlett; Jasvinder A. Singh; Peter S. Tugwell

doi:10.3899/jrheum.181071

OMERACT development of a core domain set of outcomes for shared decision-making interventions

Karine Toupin-April, Jennifer L. Barton, Liana Fraenkel, Alexa Meara, Linda C. Li, Peter Brooks, Maarten de Wit, Dawn Stacey, France Légaré, Beverley Shea, Anne Lyddiatt, Cathie Hofstetter, Robin Christensen, Marieke Scholte Voshaar, Maria E. Suarez-Almazor, Annelies Boonen, Tanya Meade, Lyn March, Janet Elizabeth Jull, Willemina CampbellRieke Alten, Suvi Karuranga, Esi M. Morgan, Ayano Kelly, Jessica Kaufman, Sophie Hill, Lara J. Maxwell, Dorcas Beaton, Yasser El-Miedany, Shikha Mittoo, Susan J. Bartlett, Jasvinder A. Singh, Peter S. Tugwell

Western Sydney University

Research output: Contribution to journal › Article › peer-review

Abstract

Objective. The Outcome Measures in Rheumatology (OMERACT) Shared Decision Making (SDM) Working Group aims to determine the core outcome domain set for measuring the effectiveness of SDM interventions in rheumatology trials. Methods. A white paper was developed to clarify the draft core domain set. It was then used to prepare for interviews to investigate reasons for lack of consensus on it and to suggest further improvements. Results. OMERACT scientists/clinicians (n = 13) and patients (n = 10) suggested limiting the core domain set to outcome domains, removing process domains, and clarifying remaining domains. Conclusion. A revised core domain set will undergo further consensus-building.

Original language	English
Pages (from-to)	1409-1414
Number of pages	6
Journal	Journal of Rheumatology
Volume	46
Issue number	10
DOIs	https://doi.org/10.3899/jrheum.181071
Publication status	Published - 2019

Keywords

decision making
rheumatology

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Toupin-April, K., Barton, J. L., Fraenkel, L., Meara, A., Li, L. C., Brooks, P., Wit, M. D., Stacey, D., Légaré, F., Shea, B., Lyddiatt, A., Hofstetter, C., Christensen, R., Scholte Voshaar, M., Suarez-Almazor, M. E., Boonen, A., Meade, T., March, L., Jull, J. E., ... Tugwell, P. S. (2019). OMERACT development of a core domain set of outcomes for shared decision-making interventions. Journal of Rheumatology, 46(10), 1409-1414. https://doi.org/10.3899/jrheum.181071

@article{ea585bafd4b3403ebb903c4744918200,

title = "OMERACT development of a core domain set of outcomes for shared decision-making interventions",

abstract = "Objective. The Outcome Measures in Rheumatology (OMERACT) Shared Decision Making (SDM) Working Group aims to determine the core outcome domain set for measuring the effectiveness of SDM interventions in rheumatology trials. Methods. A white paper was developed to clarify the draft core domain set. It was then used to prepare for interviews to investigate reasons for lack of consensus on it and to suggest further improvements. Results. OMERACT scientists/clinicians (n = 13) and patients (n = 10) suggested limiting the core domain set to outcome domains, removing process domains, and clarifying remaining domains. Conclusion. A revised core domain set will undergo further consensus-building.",

keywords = "decision making, rheumatology",

author = "Karine Toupin-April and Barton, {Jennifer L.} and Liana Fraenkel and Alexa Meara and Li, {Linda C.} and Peter Brooks and Wit, {Maarten de} and Dawn Stacey and France L{\'e}gar{\'e} and Beverley Shea and Anne Lyddiatt and Cathie Hofstetter and Robin Christensen and {Scholte Voshaar}, Marieke and Suarez-Almazor, {Maria E.} and Annelies Boonen and Tanya Meade and Lyn March and Jull, {Janet Elizabeth} and Willemina Campbell and Rieke Alten and Suvi Karuranga and Morgan, {Esi M.} and Ayano Kelly and Jessica Kaufman and Sophie Hill and Maxwell, {Lara J.} and Dorcas Beaton and Yasser El-Miedany and Shikha Mittoo and Bartlett, {Susan J.} and Singh, {Jasvinder A.} and Tugwell, {Peter S.}",

year = "2019",

doi = "10.3899/jrheum.181071",

language = "English",

volume = "46",

pages = "1409--1414",

journal = "Journal of Rheumatology",

issn = "0315-162X",

publisher = "Journal of Rheumatology Publishing Co ",

number = "10",

}

Toupin-April, K, Barton, JL, Fraenkel, L, Meara, A, Li, LC, Brooks, P, Wit, MD, Stacey, D, Légaré, F, Shea, B, Lyddiatt, A, Hofstetter, C, Christensen, R, Scholte Voshaar, M, Suarez-Almazor, ME, Boonen, A, Meade, T, March, L, Jull, JE, Campbell, W, Alten, R, Karuranga, S, Morgan, EM, Kelly, A, Kaufman, J, Hill, S, Maxwell, LJ, Beaton, D, El-Miedany, Y, Mittoo, S, Bartlett, SJ, Singh, JA & Tugwell, PS 2019, 'OMERACT development of a core domain set of outcomes for shared decision-making interventions', Journal of Rheumatology, vol. 46, no. 10, pp. 1409-1414. https://doi.org/10.3899/jrheum.181071

TY - JOUR

T1 - OMERACT development of a core domain set of outcomes for shared decision-making interventions

AU - Toupin-April, Karine

AU - Barton, Jennifer L.

AU - Fraenkel, Liana

AU - Meara, Alexa

AU - Li, Linda C.

AU - Brooks, Peter

AU - Wit, Maarten de

AU - Stacey, Dawn

AU - Légaré, France

AU - Shea, Beverley

AU - Lyddiatt, Anne

AU - Hofstetter, Cathie

AU - Christensen, Robin

AU - Scholte Voshaar, Marieke

AU - Suarez-Almazor, Maria E.

AU - Boonen, Annelies

AU - Meade, Tanya

AU - March, Lyn

AU - Jull, Janet Elizabeth

AU - Campbell, Willemina

AU - Alten, Rieke

AU - Karuranga, Suvi

AU - Morgan, Esi M.

AU - Kelly, Ayano

AU - Kaufman, Jessica

AU - Hill, Sophie

AU - Maxwell, Lara J.

AU - Beaton, Dorcas

AU - El-Miedany, Yasser

AU - Mittoo, Shikha

AU - Bartlett, Susan J.

AU - Singh, Jasvinder A.

AU - Tugwell, Peter S.

PY - 2019

Y1 - 2019

N2 - Objective. The Outcome Measures in Rheumatology (OMERACT) Shared Decision Making (SDM) Working Group aims to determine the core outcome domain set for measuring the effectiveness of SDM interventions in rheumatology trials. Methods. A white paper was developed to clarify the draft core domain set. It was then used to prepare for interviews to investigate reasons for lack of consensus on it and to suggest further improvements. Results. OMERACT scientists/clinicians (n = 13) and patients (n = 10) suggested limiting the core domain set to outcome domains, removing process domains, and clarifying remaining domains. Conclusion. A revised core domain set will undergo further consensus-building.

AB - Objective. The Outcome Measures in Rheumatology (OMERACT) Shared Decision Making (SDM) Working Group aims to determine the core outcome domain set for measuring the effectiveness of SDM interventions in rheumatology trials. Methods. A white paper was developed to clarify the draft core domain set. It was then used to prepare for interviews to investigate reasons for lack of consensus on it and to suggest further improvements. Results. OMERACT scientists/clinicians (n = 13) and patients (n = 10) suggested limiting the core domain set to outcome domains, removing process domains, and clarifying remaining domains. Conclusion. A revised core domain set will undergo further consensus-building.

KW - decision making

KW - rheumatology

UR - https://hdl.handle.net/1959.7/uws:53731

U2 - 10.3899/jrheum.181071

DO - 10.3899/jrheum.181071

M3 - Article

SN - 0315-162X

VL - 46

SP - 1409

EP - 1414

JO - Journal of Rheumatology

JF - Journal of Rheumatology

IS - 10

ER -

OMERACT development of a core domain set of outcomes for shared decision-making interventions

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Keywords

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