TY - JOUR
T1 - "Peas in a pod" : oral history reflections on autistic identity in family and community by late-diagnosed adults
AU - Lilley, Rozanna
AU - Lawson, Wenn
AU - Hall, Gabrielle
AU - Mahony, Joanne
AU - Clapham, Hayley
AU - Heyworth, Melanie
AU - Arnold, Samuel
AU - Trollor, Julian
AU - Yudell, Michael
AU - Pellicano, Elizabeth
PY - 2023/3
Y1 - 2023/3
N2 - In this paper, we report on a participatory oral history study documenting the lives of late-diagnosed autistic adults in Australia. We interviewed 26 autistic adults about their life history and the impact of late diagnosis. All were diagnosed after the age of 35, growing up in an era when autism was not well known. Using reflexive thematic analysis, we uncovered a rich body of reflections on shared Autistic identity and identified three major themes within that data set: ‘conceptualising the Autistic family’, ‘creating Autistic community’, and ‘contesting Autistic identity’. Overall, the study provides insights into the active creation of shared Autistic identity and the importance of Autistic community to these late-diagnosed autistic adults.
AB - In this paper, we report on a participatory oral history study documenting the lives of late-diagnosed autistic adults in Australia. We interviewed 26 autistic adults about their life history and the impact of late diagnosis. All were diagnosed after the age of 35, growing up in an era when autism was not well known. Using reflexive thematic analysis, we uncovered a rich body of reflections on shared Autistic identity and identified three major themes within that data set: ‘conceptualising the Autistic family’, ‘creating Autistic community’, and ‘contesting Autistic identity’. Overall, the study provides insights into the active creation of shared Autistic identity and the importance of Autistic community to these late-diagnosed autistic adults.
UR - https://hdl.handle.net/1959.7/uws:70879
U2 - 10.1007/s10803-022-05667-z
DO - 10.1007/s10803-022-05667-z
M3 - Article
SN - 0162-3257
VL - 53
SP - 1146
EP - 1161
JO - Journal of Autism and Developmental Disorders
JF - Journal of Autism and Developmental Disorders
IS - 3
ER -