People and place : co-creating an ecology of care at end of life

Debbie Horsfall; Rosemary Leonard; John P. Rosenberg; Kerrie Noonan

People and place : co-creating an ecology of care at end of life

Debbie Horsfall, Rosemary Leonard, John P. Rosenberg, Kerrie Noonan

Western Sydney University

Research output: Chapter in Book / Conference Paper › Chapter

Abstract

In this chapter we discuss findings from the Caring at End of Life research project which took place in New South Wales (NSW) and Australian Capital Territory (ACT), Australia, from 2009-2015. The research was qualitative and in-depth, and comprised interviews and focus groups with 212 lay carers, caring networks, community members and service providers. Our main aims were to understand what enables and supports caring networks when they care for someone who has chosen to die at home. We were also interested in how place of dying and death might have contributed to these networks. Importantly, our focus was on documenting and making visible what people found helpful and supportive in this process.

Original language	English
Title of host publication	Death Down Under: Twenty-first Century Dying, Death, Disposal and Memorialisation in the Antipodes
Editors	Ruth McManus, Jon Cornwall, Sally Raudon
Place of Publication	U.K.
Publisher	Cambridge Scholars Publishing
Pages	164-174
Number of pages	11
ISBN (Print)	9781527540705
Publication status	Published - 2019

Keywords

death
terminal care
caregivers
Australia

Cite this

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title = "People and place : co-creating an ecology of care at end of life",

abstract = "In this chapter we discuss findings from the Caring at End of Life research project which took place in New South Wales (NSW) and Australian Capital Territory (ACT), Australia, from 2009-2015. The research was qualitative and in-depth, and comprised interviews and focus groups with 212 lay carers, caring networks, community members and service providers. Our main aims were to understand what enables and supports caring networks when they care for someone who has chosen to die at home. We were also interested in how place of dying and death might have contributed to these networks. Importantly, our focus was on documenting and making visible what people found helpful and supportive in this process.",

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author = "Debbie Horsfall and Rosemary Leonard and Rosenberg, {John P.} and Kerrie Noonan",

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language = "English",

isbn = "9781527540705",

pages = "164--174",

editor = "Ruth McManus and Jon Cornwall and Sally Raudon",

booktitle = "Death Down Under: Twenty-first Century Dying, Death, Disposal and Memorialisation in the Antipodes",

publisher = "Cambridge Scholars Publishing",

}

People and place : co-creating an ecology of care at end of life. / Horsfall, Debbie; Leonard, Rosemary; Rosenberg, John P. et al.
Death Down Under: Twenty-first Century Dying, Death, Disposal and Memorialisation in the Antipodes. ed. / Ruth McManus; Jon Cornwall; Sally Raudon. U.K.: Cambridge Scholars Publishing, 2019. p. 164-174.

Research output: Chapter in Book / Conference Paper › Chapter

TY - CHAP

T1 - People and place : co-creating an ecology of care at end of life

AU - Horsfall, Debbie

AU - Leonard, Rosemary

AU - Rosenberg, John P.

AU - Noonan, Kerrie

PY - 2019

Y1 - 2019

N2 - In this chapter we discuss findings from the Caring at End of Life research project which took place in New South Wales (NSW) and Australian Capital Territory (ACT), Australia, from 2009-2015. The research was qualitative and in-depth, and comprised interviews and focus groups with 212 lay carers, caring networks, community members and service providers. Our main aims were to understand what enables and supports caring networks when they care for someone who has chosen to die at home. We were also interested in how place of dying and death might have contributed to these networks. Importantly, our focus was on documenting and making visible what people found helpful and supportive in this process.

AB - In this chapter we discuss findings from the Caring at End of Life research project which took place in New South Wales (NSW) and Australian Capital Territory (ACT), Australia, from 2009-2015. The research was qualitative and in-depth, and comprised interviews and focus groups with 212 lay carers, caring networks, community members and service providers. Our main aims were to understand what enables and supports caring networks when they care for someone who has chosen to die at home. We were also interested in how place of dying and death might have contributed to these networks. Importantly, our focus was on documenting and making visible what people found helpful and supportive in this process.

KW - death

KW - terminal care

KW - caregivers

KW - Australia

UR - https://hdl.handle.net/1959.7/uws:54270

UR - https://ebookcentral.proquest.com/lib/uwsau/reader.action?docID=5994491&ppg=176

M3 - Chapter

SN - 9781527540705

SP - 164

EP - 174

BT - Death Down Under: Twenty-first Century Dying, Death, Disposal and Memorialisation in the Antipodes

A2 - McManus, Ruth

A2 - Cornwall, Jon

A2 - Raudon, Sally

PB - Cambridge Scholars Publishing

CY - U.K.

ER -

People and place : co-creating an ecology of care at end of life

Abstract

Keywords

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