TY - JOUR
T1 - Quality of life and psychosocial well-being among children living with HIV at a care home in Southern India
AU - Lang, Tess
AU - Heylen, Elsa
AU - Perumpil, Sheeja
AU - Shet, Anita
AU - Perumpil, Mathew
AU - Steward, Wayne
AU - Shamban, Emily
AU - Ekstrand, Maria L.
PY - 2014
Y1 - 2014
N2 - This study was designed to evaluate the quality of life (QOL) of children living with HIV at an institutional care home in Bangalore, India. The Sneha Care Home is a unique residence that provides educational and community support with a focus on physical, nutritional, medical, and psychological care for orphans and vulnerable children. Cross-sectional health measures and interview data were collected from 97 residents including 52 boys and 45 girls between 5 and 12 years of age (mean age = 9). QOL was measured with the Pediatric Quality of Life 4.0 (PedsQL) Inventory. Caregivers perceived children to have an overall higher QOL than was self-reported by children (total score 83 vs. 78). Our findings indicated self-reported QOL decreased with age of the child, while caregiver-reported QOL increased with age, suggesting a need to ensure greater psychological support for older children. Physical measures showed the children’s clinical severity of disease remained well controlled living in this residential, values-based care home.
AB - This study was designed to evaluate the quality of life (QOL) of children living with HIV at an institutional care home in Bangalore, India. The Sneha Care Home is a unique residence that provides educational and community support with a focus on physical, nutritional, medical, and psychological care for orphans and vulnerable children. Cross-sectional health measures and interview data were collected from 97 residents including 52 boys and 45 girls between 5 and 12 years of age (mean age = 9). QOL was measured with the Pediatric Quality of Life 4.0 (PedsQL) Inventory. Caregivers perceived children to have an overall higher QOL than was self-reported by children (total score 83 vs. 78). Our findings indicated self-reported QOL decreased with age of the child, while caregiver-reported QOL increased with age, suggesting a need to ensure greater psychological support for older children. Physical measures showed the children’s clinical severity of disease remained well controlled living in this residential, values-based care home.
KW - HIV-positive children
KW - India
KW - institutional care
KW - quality of life
UR - http://handle.westernsydney.edu.au:8081/1959.7/uws:41189
U2 - 10.1080/17450128.2014.933942
DO - 10.1080/17450128.2014.933942
M3 - Article
SN - 1745-0128
VL - 9
SP - 345
EP - 352
JO - Vulnerable Children and Youth Studies
JF - Vulnerable Children and Youth Studies
IS - 4
ER -
