Research participants' views of the feedback of genetic test information following participation in the International Sarcoma Kindred Study (ISKS)

Kate McBride, Judy Kirk, Gillian Mitchell, David Thomas, Martin Tattersall, Mary-Ann Young

Research output: Contribution to journalArticlepeer-review

Abstract

Advances in genomic technology have resulted in an abundance of genetic information which is accessible to research participants. It is generally accepted that researchers have an ethical duty to notify research participants of information that can affect a person's health or prevent significant harm. The International Sarcoma Kindred Study (ISKS), a population based study, recruited individuals diagnosed with sarcoma, their spouses and family members.
Original languageEnglish
Article number257
Pages (from-to)132-133
Number of pages2
JournalAsia Pacific Journal of Clinical Oncology
Volume9
Issue numberS3
DOIs
Publication statusPublished - 2013

Keywords

  • genetic disorders
  • testing
  • cancer
  • sarcoma
  • medical ethics

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