Abstract
Advances in genomic technology have resulted in an abundance of genetic information which is accessible to research participants. It is generally accepted that researchers have an ethical duty to notify research participants of information that can affect a person's health or prevent significant harm. The International Sarcoma Kindred Study (ISKS), a population based study, recruited individuals diagnosed with sarcoma, their spouses and family members.
Original language | English |
---|---|
Article number | 257 |
Pages (from-to) | 132-133 |
Number of pages | 2 |
Journal | Asia Pacific Journal of Clinical Oncology |
Volume | 9 |
Issue number | S3 |
DOIs | |
Publication status | Published - 2013 |
Keywords
- genetic disorders
- testing
- cancer
- sarcoma
- medical ethics