The chronic angioedema registry (CARE): rationale, methods and implementation

T. Buttgereit; F. Aulenbacher; A. Gutsche; P. Kolkhir; K. Weller; C. Vera Ayala; M. Magerl; H. Farkas; A. S. Grumach; E. Aygören-Pürsün; N. Bara; M. Ben-Shoshan; J. Bernstein; S. Betschel; L. Bouillet; T. Caballero; M. Cancian; A. J. Castaldo; S. Cimbollek; D. M. Cohn; T. Craig; D. Fomina; A. Gelincik; V. Grivcheva-Panovska; A. Jindal; C. Katelaris; A. Kessel; T. Kinaciyan; H. J. Longhurst; I. Martinez-Saguer; M. Riedl; C. Schöffl; P. Staubach; A. Zanichelli; Y. Zhi; H. Balle Boysen; J. S. Fok; P. H. Li; R. Hakl; M. Hide; J. Peter; M. Maurer

doi:10.1111/cea.14527

The chronic angioedema registry (CARE): rationale, methods and implementation

T. Buttgereit
, F. Aulenbacher
, A. Gutsche
, P. Kolkhir
, K. Weller
, C. Vera Ayala
, M. Magerl
, H. Farkas
, A. S. Grumach
, E. Aygören-Pürsün
, N. Bara
, M. Ben-Shoshan
, J. Bernstein
, S. Betschel
, L. Bouillet
, T. Caballero
, M. Cancian
, A. J. Castaldo
, S. Cimbollek
, D. M. Cohn

T. Craig, D. Fomina, A. Gelincik, V. Grivcheva-Panovska, A. Jindal, C. Katelaris, A. Kessel, T. Kinaciyan, H. J. Longhurst, I. Martinez-Saguer, M. Riedl, C. Schöffl, P. Staubach, A. Zanichelli, Y. Zhi, H. Balle Boysen, J. S. Fok, P. H. Li, R. Hakl, M. Hide, J. Peter, M. Maurer

School of Medicine

Charité – Universitätsmedizin Berlin
Fraunhofer Institute for Translational Medicine and Pharmacology ITMP
Semmelweis University
Fundação Universitaria do ABC, Faculdade de Medicina do ABC
Goethe University Frankfurt
Centru Clinic Mediquest
McGill University
University of Cincinnati
University of Toronto
National Reference Center of Angioedema CREAK
CHU de Grenoble
Universidad Autónoma de Madrid
Azienda Ospedaliera di Padova
HAE International – HAEi
Hospital Universitario Virgen del Rocio
University of Amsterdam
Pennsylvania State University
International Hospital
Moscow Healthcare Department
Sechenov First Moscow State Medical University
Astana Medical University
Istanbul University
SS Cyril and Methodius University in Skopje
Postgraduate Institute of Medical Education and Research
Campbelltown Hospital
Technion-Israel Institute of Technology
Medical University of Vienna
The University of Auckland
Auckland District Health Board
Haemophilia Centre Rhine Main (HZRM)
University of California at San Diego
Medical University of Graz
Johannes Gutenberg University Mainz
University of Milan
IRCCS Policlinico San Donato
Chinese Academy of Medical Sciences
Box Hill Hospital
Monash University
Angioedema Center of Reference and Excellence (ACARE)
The University of Hong Kong
Masaryk University
Hiroshima University
Hiroshima City Hiroshima Citizens Hospital
University of Cape Town

Research output: Contribution to journal › Article › peer-review

8 Citations (Scopus)

27 Downloads (Pure)

Abstract

Chronic Angioedema Registry (CARE) is the first disease registry for recurrent angioedema of all presentations/aetiologies.CARE will equip physicians with information to enhance patient care and guide future therapeutic decisions.

Original language	English
Pages (from-to)	712-716
Number of pages	5
Journal	Clinical and Experimental Allergy
Volume	54
Issue number	9
DOIs	https://doi.org/10.1111/cea.14527
Publication status	Published - Sept 2024

Keywords

ACARE
angioedema
CARE
chronic
registry

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10.1111/cea.14527Licence: CC BY

full textFinal published version, 334 KBLicence: CC BY

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Buttgereit, T., Aulenbacher, F., Gutsche, A., Kolkhir, P., Weller, K., Vera Ayala, C., Magerl, M., Farkas, H., Grumach, A. S., Aygören-Pürsün, E., Bara, N., Ben-Shoshan, M., Bernstein, J., Betschel, S., Bouillet, L., Caballero, T., Cancian, M., Castaldo, A. J., Cimbollek, S., ... Maurer, M. (2024). The chronic angioedema registry (CARE): rationale, methods and implementation. Clinical and Experimental Allergy, 54(9), 712-716. https://doi.org/10.1111/cea.14527

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title = "The chronic angioedema registry (CARE): rationale, methods and implementation",

abstract = "Chronic Angioedema Registry (CARE) is the first disease registry for recurrent angioedema of all presentations/aetiologies.CARE will equip physicians with information to enhance patient care and guide future therapeutic decisions.",

keywords = "ACARE, angioedema, CARE, chronic, registry",

author = "T. Buttgereit and F. Aulenbacher and A. Gutsche and P. Kolkhir and K. Weller and C. Vera Ayala and M. Magerl and H. Farkas and Grumach, \{A. S.\} and E. Ayg{\"o}ren-P{\"u}rs{\"u}n and N. Bara and M. Ben-Shoshan and J. Bernstein and S. Betschel and L. Bouillet and T. Caballero and M. Cancian and Castaldo, \{A. J.\} and S. Cimbollek and Cohn, \{D. M.\} and T. Craig and D. Fomina and A. Gelincik and V. Grivcheva-Panovska and A. Jindal and C. Katelaris and A. Kessel and T. Kinaciyan and Longhurst, \{H. J.\} and I. Martinez-Saguer and M. Riedl and C. Sch{\"o}ffl and P. Staubach and A. Zanichelli and Y. Zhi and H. Balle Boysen and Fok, \{J. S.\} and Li, \{P. H.\} and R. Hakl and M. Hide and J. Peter and M. Maurer",

year = "2024",

month = sep,

doi = "10.1111/cea.14527",

language = "English",

volume = "54",

pages = "712--716",

journal = "Clinical and Experimental Allergy",

issn = "0954-7894",

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Buttgereit, T, Aulenbacher, F, Gutsche, A, Kolkhir, P, Weller, K, Vera Ayala, C, Magerl, M, Farkas, H, Grumach, AS, Aygören-Pürsün, E, Bara, N, Ben-Shoshan, M, Bernstein, J, Betschel, S, Bouillet, L, Caballero, T, Cancian, M, Castaldo, AJ, Cimbollek, S, Cohn, DM, Craig, T, Fomina, D, Gelincik, A, Grivcheva-Panovska, V, Jindal, A, Katelaris, C, Kessel, A, Kinaciyan, T, Longhurst, HJ, Martinez-Saguer, I, Riedl, M, Schöffl, C, Staubach, P, Zanichelli, A, Zhi, Y, Balle Boysen, H, Fok, JS, Li, PH, Hakl, R, Hide, M, Peter, J & Maurer, M 2024, 'The chronic angioedema registry (CARE): rationale, methods and implementation', Clinical and Experimental Allergy, vol. 54, no. 9, pp. 712-716. https://doi.org/10.1111/cea.14527

TY - JOUR

T1 - The chronic angioedema registry (CARE)

T2 - rationale, methods and implementation

AU - Buttgereit, T.

AU - Aulenbacher, F.

AU - Gutsche, A.

AU - Kolkhir, P.

AU - Weller, K.

AU - Vera Ayala, C.

AU - Magerl, M.

AU - Farkas, H.

AU - Grumach, A. S.

AU - Aygören-Pürsün, E.

AU - Bara, N.

AU - Ben-Shoshan, M.

AU - Bernstein, J.

AU - Betschel, S.

AU - Bouillet, L.

AU - Caballero, T.

AU - Cancian, M.

AU - Castaldo, A. J.

AU - Cimbollek, S.

AU - Cohn, D. M.

AU - Craig, T.

AU - Fomina, D.

AU - Gelincik, A.

AU - Grivcheva-Panovska, V.

AU - Jindal, A.

AU - Katelaris, C.

AU - Kessel, A.

AU - Kinaciyan, T.

AU - Longhurst, H. J.

AU - Martinez-Saguer, I.

AU - Riedl, M.

AU - Schöffl, C.

AU - Staubach, P.

AU - Zanichelli, A.

AU - Zhi, Y.

AU - Balle Boysen, H.

AU - Fok, J. S.

AU - Li, P. H.

AU - Hakl, R.

AU - Hide, M.

AU - Peter, J.

AU - Maurer, M.

PY - 2024/9

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N2 - Chronic Angioedema Registry (CARE) is the first disease registry for recurrent angioedema of all presentations/aetiologies.CARE will equip physicians with information to enhance patient care and guide future therapeutic decisions.

AB - Chronic Angioedema Registry (CARE) is the first disease registry for recurrent angioedema of all presentations/aetiologies.CARE will equip physicians with information to enhance patient care and guide future therapeutic decisions.

KW - ACARE

KW - angioedema

KW - CARE

KW - chronic

KW - registry

UR - https://www.scopus.com/pages/publications/85196758869

U2 - 10.1111/cea.14527

DO - 10.1111/cea.14527

M3 - Article

C2 - 38924594

AN - SCOPUS:85196758869

SN - 0954-7894

VL - 54

SP - 712

EP - 716

JO - Clinical and Experimental Allergy

JF - Clinical and Experimental Allergy

IS - 9

ER -

The chronic angioedema registry (CARE): rationale, methods and implementation

Abstract

Keywords

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