The gains and pains of being a cancer support group leader : a qualitative survey of rewards and challenges

Phyllis Butow, Linda Beeney, Ilona Juraskova, Jane Ussher, Rachel Zordan

Research output: Contribution to journalArticle

2 Citations (Scopus)

Abstract

Rewards derived from leading a cancer support group are poorly understood yet may be crucial to offset the challenges and difficulties of this role. This study sought to obtain the views of a representative sample of Australian cancer support group leaders (CSGLs) concerning the perceived rewards and challenges of their role. All CSGLs identified by the state-based Cancer Councils were invited to participate by postal questionnaire. Qualitative methods were used to analyze responses to open-ended questions concerning rewards and challenges. A total of 300 CSGLs returned the questionnaire (response rate = 66%) with 272 providing qualitative comments. Four parallel themes emerged from the qualitative analysis: (i) Personal, (ii) Relationship, (iii) Group, and (iv) Community rewards and challenges. These were integrated into a model depicting key positive and negative aspects of the CSGL's role, to provide direction for future training and ongoing support of CSGLs.
Original languageEnglish
Pages (from-to)750-767
Number of pages18
JournalSocial work in Health Care
Volume48
Issue number8
DOIs
Publication statusPublished - 2009

Keywords

  • cancer
  • interpersonal relations
  • leadership
  • reward (psychology)
  • self-help groups
  • stress (psychology)

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