TY - JOUR
T1 - There is family tension, but they understand...' : familial and sibling relationships following the diagnosis of cerebral palsy in children in Ghana
AU - Dogbe, Joslin Alexei
AU - Kyeremateng, Joana D. A.
AU - Opoku, Maxwell Peprah
AU - Nketsia, William
AU - Hammond, Charles
PY - 2022
Y1 - 2022
N2 - The challenges faced by parents raising children with cerebral palsy (CP) have been well explored in the literature. However, little attention has been paid to the experiences of parents raising children with CP in low-income countries, such as Ghana. Objective: Therefore, the objective of this study was to explore parents' experiences of raising children with CP, specifically focusing on the relationships between spouses and between children with CP and their typically developing siblings. Method: Qualitative semi-structured interviews were conducted with 40 parents, who were purposively selected from the largest tertiary hospital in Ghana. Results: The results revealed that typically developing children accept their siblings with CP as their equals and even take up domestic responsibilities to lessen the burden on their parents. However, the parents reported experiencing marital and extended family conflict, financial burden and negative attitudes from spouses, resulting in family tensions. Conclusion: The implications of these findings for policymaking have also been discussed.
AB - The challenges faced by parents raising children with cerebral palsy (CP) have been well explored in the literature. However, little attention has been paid to the experiences of parents raising children with CP in low-income countries, such as Ghana. Objective: Therefore, the objective of this study was to explore parents' experiences of raising children with CP, specifically focusing on the relationships between spouses and between children with CP and their typically developing siblings. Method: Qualitative semi-structured interviews were conducted with 40 parents, who were purposively selected from the largest tertiary hospital in Ghana. Results: The results revealed that typically developing children accept their siblings with CP as their equals and even take up domestic responsibilities to lessen the burden on their parents. However, the parents reported experiencing marital and extended family conflict, financial burden and negative attitudes from spouses, resulting in family tensions. Conclusion: The implications of these findings for policymaking have also been discussed.
KW - Ghana
KW - brothers and sisters
KW - cerebral palsied children
KW - cerebral palsy
KW - family relationships
KW - parents of children with disabilities
UR - http://hdl.handle.net/1959.7/uws:51235
U2 - 10.1080/20473869.2019.1573572
DO - 10.1080/20473869.2019.1573572
M3 - Article
SN - 2047-3869
VL - 68
SP - 35
EP - 46
JO - International Journal of Developmental Disabilities
JF - International Journal of Developmental Disabilities
IS - 1
ER -