Understanding endometriosis knowledge among diagnosed and symptomatically at-risk individuals in Australia

Anne Reinhardt; Amelia K. Mardon; Sarah Eitze; Hannah Adler; Danielle Howe; Michelle O’Shea; Mike Armour

doi:10.1038/s44294-025-00096-6

Understanding endometriosis knowledge among diagnosed and symptomatically at-risk individuals in Australia

Anne Reinhardt, Amelia K. Mardon, Sarah Eitze, Hannah Adler, Danielle Howe, Michelle O’Shea, Mike Armour

NICM Health Research Institute

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Abstract

Endometriosis affects 5–14% of women and those presumed female at birth (PFAB), yet public understanding remains limited. In an online survey of 427 Australians, diagnosed individuals had better knowledge about endometriosis than those at risk but undiagnosed. In detail, at-risk individuals underestimated prevalence, consequences, and diagnostic pathways. Targeted education may improve symptom recognition and healthcare engagement, supporting earlier diagnosis and better care.

Original language	English
Number of pages	5
Journal	npj Women's Health
Volume	3
Issue number	1
DOIs	https://doi.org/10.1038/s44294-025-00096-6
Publication status	Published - 2025

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10.1038/s44294-025-00096-6Licence: CC BY

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Cite this

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abstract = "Endometriosis affects 5–14% of women and those presumed female at birth (PFAB), yet public understanding remains limited. In an online survey of 427 Australians, diagnosed individuals had better knowledge about endometriosis than those at risk but undiagnosed. In detail, at-risk individuals underestimated prevalence, consequences, and diagnostic pathways. Targeted education may improve symptom recognition and healthcare engagement, supporting earlier diagnosis and better care.",

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