Urban share of the "burden" : impact of a support organisation on caregiver burden of people affected by dementia

Oya Gumuskaya; Sevim Sen; Isil Isik; Volkan Ayaz; Hediye Arslan Ozkan; Rhonda L. Wilson

doi:10.1155/2023/2706698

Urban share of the "burden" : impact of a support organisation on caregiver burden of people affected by dementia

Oya Gumuskaya
, Sevim Sen
, Isil Isik
, Volkan Ayaz
, Hediye Arslan Ozkan
, Rhonda L. Wilson

Research output: Contribution to journal › Article › peer-review

1 Citation (Scopus)

1 Downloads (Pure)

Abstract

Purpose. This study investigated the experiences and expectations of unpaid caregivers who were members of a nonprofit social support organisation. Design and Methods. Colaizzi's phenomenological exploration was followed. Data were saturated after 15 in-depth individual interviews at a centre for people affected with dementia. Findings. The themes reported with the COREQ checklist were contributory to caregiver burden, the escalation of dementia symptoms, changes in family roles, psychological distress, social challenges, membership in a social network, and developing effective coping skills. Practice Implications. Access, availability, and continuity of psychosocial support programs are vital for the wellbeing of people affected with dementia.

Original language	English
Article number	2706698
Number of pages	8
Journal	Perspectives in Psychiatric Care
Volume	2023
DOIs	https://doi.org/10.1155/2023/2706698
Publication status	Published - 2023

Bibliographical note

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© 2023 Oya Gümüşkaya et al.

Open Access - Access Right Statement

©2023 The authors. This is an open access article distributed under the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

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10.1155/2023/2706698

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Cite this

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abstract = "Purpose. This study investigated the experiences and expectations of unpaid caregivers who were members of a nonprofit social support organisation. Design and Methods. Colaizzi's phenomenological exploration was followed. Data were saturated after 15 in-depth individual interviews at a centre for people affected with dementia. Findings. The themes reported with the COREQ checklist were contributory to caregiver burden, the escalation of dementia symptoms, changes in family roles, psychological distress, social challenges, membership in a social network, and developing effective coping skills. Practice Implications. Access, availability, and continuity of psychosocial support programs are vital for the wellbeing of people affected with dementia.",

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AU - Gumuskaya, Oya

AU - Sen, Sevim

AU - Isik, Isil

AU - Ayaz, Volkan

AU - Ozkan, Hediye Arslan

AU - Wilson, Rhonda L.

PY - 2023

Y1 - 2023

N2 - Purpose. This study investigated the experiences and expectations of unpaid caregivers who were members of a nonprofit social support organisation. Design and Methods. Colaizzi's phenomenological exploration was followed. Data were saturated after 15 in-depth individual interviews at a centre for people affected with dementia. Findings. The themes reported with the COREQ checklist were contributory to caregiver burden, the escalation of dementia symptoms, changes in family roles, psychological distress, social challenges, membership in a social network, and developing effective coping skills. Practice Implications. Access, availability, and continuity of psychosocial support programs are vital for the wellbeing of people affected with dementia.

AB - Purpose. This study investigated the experiences and expectations of unpaid caregivers who were members of a nonprofit social support organisation. Design and Methods. Colaizzi's phenomenological exploration was followed. Data were saturated after 15 in-depth individual interviews at a centre for people affected with dementia. Findings. The themes reported with the COREQ checklist were contributory to caregiver burden, the escalation of dementia symptoms, changes in family roles, psychological distress, social challenges, membership in a social network, and developing effective coping skills. Practice Implications. Access, availability, and continuity of psychosocial support programs are vital for the wellbeing of people affected with dementia.

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ER -

Urban share of the "burden" : impact of a support organisation on caregiver burden of people affected by dementia

Abstract

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