What Matters in the End: Understanding the End-of-Life Needs of Culturally & Linguistically Diverse and Aboriginal Communities in Western Sydney Local Health District

What Matters in the End is the culmination of a three-year multi-method, multi-disciplinary research initiative investigating the end-of-life needs of culturally diverse people living in Western Sydney. The research was undertaken by the Western Sydney University Caring at End-of-Life Research Program in collaboration with Western Sydney Local Health District. We worked with participants from the Aboriginal community and from Arabic, Mandarin and Hindi speaking backgrounds, as well as healthcare professionals and people working in the end-of-life space, to find out what is needed in the service system and wider community to support culturally diverse people and their families at end-of life. The report provides details of the research design and findings as well as a comprehensive set of recommendations for the delivery of culturally appropriate and safe end-of-life and bereavement care.