Working and caring for children with chronic illness/disability : stories of disconnection, cruelty and "Clayton's support"

Margaret H. (Margaret Heather) Vickers

    Research output: Contribution to journalArticle

    Abstract

    This paper reports the findings of an exploratory, qualitative study of the life and work of people who are, concurrently, parents of a child with chronic illness/disability, and working full-time. Nine women shared their experiences about the demands of caring for a child with chronic illness/disability while working full-time. In light of the demands constantly placed on these women as they manage their multiple roles, it was of particular interest that their stories shared feelings of disconnectedness from others, as well as frank recollections of the cruelty and thoughtlessness of partners, family, friends, colleagues and strangers. They also reported their experiences with "Clayton's support" - the support you get when you are not getting support. These stories are shared in an effort to ameliorate the continuing challenges faced by these women.
    Original languageEnglish
    Number of pages13
    JournalReview of disability studies : an international journal
    Publication statusPublished - 2005

    Keywords

    • working mothers
    • parents of chronically ill children
    • work and family
    • caregivers
    • health and hygiene
    • case studies

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